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Links to Medical Information

Clinical/Technical

Wheeless’ Textbook of Orthopaedics (Duke Orthopaedics) – A good source of technical information. Results for search on “arthrogryposis”.

Arthrogryposis entry in e-Medicine, by Harold Chen.

Support Groups

Avenues: A National Support Group for Arthrogryposis Multiplex Congenita – A national support group from the USA, with lots of information and links to a medical database, personal web pages and lots more.

TAG: The Arthrogryposis Group – A UK support group for individuals or families with children affected by arthrogryposis.

The Australian Arthrogryposis Group (TAAG) Inc. – A pretty informative web site, well-written. This group produces a newsletter that is available to members only; they also have a physical equipment library to help your child in mobility and play.

AMCSupport.org – A support group for arthrogryposis multiplex congenita, this is a family-oriented group based out of the USA. They have a very good site with information about the disorder, scheduled online chat forums to discuss issues to do with arthrogryposis multiplex congenita (a free service) and hold annual conferences.

Family Support

Parent to Parent New Zealand

New Zealand TelePaediatric Service – A valuable service used in hospitals for consultation with specialists located overseas or in other hospitals.  Here is a list of sites in NZ that offer a TelePaediatric service. Note the hospitals and Parent to Parent centres available.

Mobility Support

Weka – “What everybody keeps asking about disability information” – New Zealand’s disability information web site. An excellent resource covering all aspects of travel and mobility across NZ.  Here is a Weka page listing transport services in NZ.

Disability in New Zealand – Ministry of Health (NZ) guide to services provided by the Ministry.